Erythropoietic protoporphyria

Results: 75



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41Medicine / Porphyria / Acute intermittent porphyria / Variegate porphyria / Erythropoietic protoporphyria / Erythropoietic porphyria / Hemin / Fentanyl / Porphyrin / Porphyrias / Chemistry / Health

3rd Quarter, 2006 SOUTHERN CALIFORNIA IN TOUCH MEETING Recently, The Southern California Porphyria Support group was graciously hosted by Mira Geffner and her husband, Paul Southworth in their lovely home in Los Angeles

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Source URL: www.porphyriafoundation.com

Language: English - Date: 2014-02-26 18:32:47
42Acute intermittent porphyria / Erythropoietic protoporphyria / Heme arginate / Hereditary coproporphyria / Porphyrias / Health / Medicine

1st Quarter, 2008 National Porphyria Awareness Week March 29-April 5, 2008 YOU have the opportunity to enhance awareness of the porphyrias and to educate medical professionals in YOUR area. The APF will assist YOU and s

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Source URL: www.porphyriafoundation.com

Language: English - Date: 2014-02-26 18:32:40
43Medicine / Porphyria / Acute intermittent porphyria / Variegate porphyria / Hereditary coproporphyria / Erythropoietic protoporphyria / Erythropoietic porphyria / Peter Tishler / Porphyrin / Porphyrias / Health / Chemistry

3rd Quarter, 2007 Exciting New Research Project: Dr. Herbert Bonkovsky Life requires energy. Except for mature red blood cells, all cells in the body have organelles called “mitochondria”, which are the “energy pl

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Source URL: www.porphyriafoundation.com

Language: English - Date: 2014-02-26 18:32:38
44Acute intermittent porphyria / Erythropoietic protoporphyria / Porphyrias / Health / Medicine

4th Quarter, 2008 Merry Christmas and Happy Holidays We Pray God’s Blessings for a Happy and Healthy New Year. Together we have made great strides in diagnosis and treatment of the porphyrias. We look forward to even

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Source URL: www.porphyriafoundation.com

Language: English - Date: 2014-02-26 18:32:35
45Medicine / Erythropoietic protoporphyria / Variegate porphyria / Hereditary coproporphyria / Heme arginate / Afamelanotide / Hemin / Hydroxychloroquine / Rare Diseases Clinical Research Network / Porphyrias / Chemistry / Health

3rd Quarter, 2012 Dr. Eric Gou Protect the Future’s Newest Doctor The Protect the Future (PTF) program is one of the most important programs the APF. To explain, the present porphyria experts have been the major sourc

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Source URL: www.porphyriafoundation.com

Language: English - Date: 2014-02-26 18:31:53
46Porphyria / Acute intermittent porphyria / Erythropoietic protoporphyria / Variegate porphyria / Hereditary coproporphyria / House / Peter Tishler / Porphyrias / Health / Medicine

3rd Quarter, 2008 A Gift of Friendship and Education Over the past year, we received a number of requests from physicians around South America asking us to facilitate educational meetings about porphyria diagnosis, trea

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Source URL: www.porphyriafoundation.com

Language: English - Date: 2014-02-26 18:32:41
47Acute intermittent porphyria / Erythropoietic protoporphyria / Erythropoietic porphyria / Peter Tishler / Porphyrias / Health / Medicine

March, 2010 Porphyria Research Is Starting Now… And You Can Help! Left to right, Dr. Lawrence Liu, Dr. Robert Desnick, Dr. Joseph Bloomer, Dr. John Phillips, Dr. Montgomery Bissell, Dr. Manisha Balwani, Dr. Karl Ander

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Source URL: www.porphyriafoundation.com

Language: English - Date: 2014-02-26 18:32:45
48Acute intermittent porphyria / Erythropoietic protoporphyria / Variegate porphyria / Peter Tishler / Genetic testing / Porphyrias / Health / Medicine

2nd Quarter, [removed]President’s Award CONGRATULATIONS!!! We are proud to announce that APF member, Dave McRae, has been presented with the APF 2007 President’s Award. Dave and his wife, Laurie, are

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Source URL: www.porphyriafoundation.com

Language: English - Date: 2014-02-26 18:32:39
49Anatomy / Porphyria / Acute intermittent porphyria / Erythropoietic protoporphyria / Robert J. Desnick / Systemic lupus erythematosus / Peter Tishler / Health / Porphyrias / Medicine

4th Quarter, 2012 Merry Christmas, Happy Hanukah, Happy New Year May God Bless You With His Peace, Happiness, Mercy, Joy and Good Health in the New Year. We, too, have been blessed by knowing so many of you personally a

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Source URL: www.porphyriafoundation.com

Language: English - Date: 2014-02-26 18:32:15
50Medicine / Erythropoietic protoporphyria / Acute intermittent porphyria / Afamelanotide / Peter Tishler / Porphyrin / Porphyrias / Chemistry / Health

Research: The Key To Your Cure! The Porphyria Research Consortium has won funding from the government to perform research, which it is on-going NOW. However, the researchers (shown below) need far more volunteers to con

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Source URL: www.porphyriafoundation.com

Language: English - Date: 2014-02-26 18:32:22
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